Posted by: donrhymer | July 31, 2011

Come on, Really?

I was really hoping this blog was over.

Maybe not over-over. Maybe I would come back with a legendary “what I’ve learned” blog entry that would leave a grateful nation crying on their laptops and was later optioned and adapted into a very special Christmas episode of “Storage Wars” or something. But no, it looks like our story is far from over.

The turtlenecks are back and just in time for the dog days of August. After my last surgery in May there was a quick proclamation of “you’re fine, see you in three months” followed by an even quicker “not so fast Sailor.” The debating began and after a couple of weeks it was decided that more radiation would be helpful. The tumor had grown so quickly they were afraid even after the surgery it could come back again.

So as I casually prepped for radiation we had a little shocker… we were too late. It had already come back and with a vengeance.

USC Norris Cancer Center has a weekly “tumor board.” A chance to bring up perplexing cases, present them to the entire staff and get feedback. Yours Truly is the star of the tumor board. They can’t get enough of me.

So now the “tumor board” was recommending a do-over. More surgery, chemo and radiation. I mean why not, it is summer, what better time for a sequel.

So last Friday I went into the hospital and came out three days later with a new neck, 54 staples in my chest and a seriously re-arranged nipple. But more on that later.

 

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Responses

  1. Dude – I am hating on some cancer right now!! Hang in there the best you can and we will continue to pray for you!

  2. Hi, I’m a subscriber. 🙂 I’m not much of a responder, but I like your writing, and I find value in hearing the tales of others. Or maybe it’s something to do with my dad dying of Leukemia when I was little. Who knows?

    I’m sure you’ve already looked into this, but on the off-chance, I thought I’d drop a note. I only first heard of him a couple of months ago.

    His name is Byrzynski, and even if you never looked more into him, I’m sure you’ve heard of him. He seems to have a Pied Piper reputation in the field of Cancer. Most people think he’s a quack, but I’ve been reading up on him and I’m really not sure I buy it. I read one article saying he had no background in any field related to oncology. The article never mentioned he has the equivalent to a Phd in biochemistry. I see another that says his results can’t be duplicated, and then I see documents stating how attempts to ‘recreate’ his results were performed without using his dosing instructions. I’m not a conspiracy theorist, but something’s off there.

    There’s a documentary online, called “Cancer Is Serious Business” that details his background, the work he’s done, and the bizarre behavior of the FDA who has literally been called on the carpet for their attempts to indict him without sufficient evidence again and again. One of the federal judges is interviewed in the documentary, and at best he paints the FDA as having a base-less argument.

    The documentary also shows hard-copy of independent lab work, showing the results of individual tumor reduction. It’s not some miracle cure, and no one claims it is. But it is a treatment that has had some significant effects without the damage and side effects of the chemo and radiation.

    The truly unfortunate reality too; most of the restrictions on Burzynski’s current approved trials requires you to go practically as far as you have before you can add his treatment to your regimen.

    I’m willing to be proven wrong, if this guy is full of it. But watch the documentary, and see for yourself. It’s not manipulative or even overly sentimental. It’s actually a really well made piece.

    And I know this comment is ridiculously long. But I didn’t see an email link on hand. Feel free to delete it. 🙂


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